My son needs minor surgery....

ExMember148 replied:

Oh dear, how overwhelming for you.  But remember it's not the end of the world.  In the face of adveristy you can grow stronger!

A very good friend of mine has Coeliac disease and so does her two daughters.  She has learnt to be a very good cook, as she can control the wheats etc.  There are much more foods today that are being produced for these people as well.  But you have to be careful of the tricky places where they hide the glutens.

Maybe you could try and cut back on some of your extra curricular activities for a bit.  So you can dedicate some time to becoming more educated about this disease.  There is a support group I know that much.  And being educated can only make you stronger!!  Don't fear asking for help, there must be other parents available that can pick up the slack for you for a short time (trust me, I know about this!!).  This may also help with some of those headaches!!! 

Also, do yourself a favour.  Beg, borrow or steal a copy of THE SECRET.  And read and study and embrace this whole law of attraction.  DON'T buy That's Life or Take 5, especially at this trying time in your life.  Reading of other's woes and misfortunes will only elevate your own.   Instead focus on the positives of your life and surroundings and more good will come to you. 

Good luck and keep smiling. 

scentedcandlelady replied:

Hi you poor thing... If he is diagnosed.. join the coelic society they have heaps of useful information and there should be a great networking association with it as well.  In queensland, we have lots of health food stores and places such as Mrs flanneries who will help you a lot with different foods etc.  Also try googling coeliac stores and gluten free stores and see what is available on line.. all the best.  The bes tthing is if you can control his diet when he is young .. hie pain will go and you will probably find he will be a lot happier...

All the best ..

prayers and thoughts with you

marina replied:

Hi Leilani,

In tough times we do find  inner strength and you and your family will get through this.

My thoughts and prayers are with you.

Make sure you get your dizzy spells checked out and let us know if you are ok.

take care

marina

CustomCandles replied:

Hi Leilani,

You are in my thoughts with all that is going on for you.

I am sure that your son will be fine.  You have some good advice here.  Do join the Coelic Society.  They will be a blessing for you.  I have a girl friend that has this and they have been very good for her.  Take care of yourself as well. 

I know the feeling of "It Never Rains, but It Pours".

I have that same in my house at the moment.

My eldest son broke his nose a little while back.

Then my hubby dislocated his shoulder at work.

The very next day my second son broke his leg at footy training.

I thought that was going to be it.

But then my little one fell off his bike and grazed all his face, arms and legs.

Then last week at school, two of my boys got diognosed with irlen syndrome. A form of dyslexicia.  So now we are off the the Dyslexic Centre on Monday for more testing etc.

Then on Tuesday we are back at the Fracture Clinic to see how my other son's leg is. 

It has not been healing and he has had to leave the cast on for another 3 weeks to see how it goes.

If they are not happy with it, they are going to operate and put a pin in his leg.

All this and he is only 11 years old.

So I have a pretty stressfull time ahead myself.

Sorry to babble about my situation on here.

You and your family are in my thoughts, and I hope you are all well soon.

Take care

Sharon.

Kelly replied:

I can completely understand your concern and I will be thinkign of you during this stressful period.

Both my aunt and my cousins have the same condition. I know that there is a book they use so that they can make sure the food they are eating/buying does not contain anything that will set them off. I'll find out what it is called and pm you the name and where you can get it from.

I have to have regular biopsies done myself and I know how unpleasant they can be. Lots of rest and tlc after the procedure and Im sure that you son will recover quickly.

xxx

SaucyHeaven replied:

Thanks everyone for your kind words, prayers and well wishes.  I rang the Westmead Childrens Hospital today and we have the 14th and 15th June as the days he goes in for the op. 

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I spoke with Ronald McDonald House this afternoon, and they MIGHT be able to let us stay there, but we wont know for definite until a couple of days before my son goes into hospital.  We need more than a couple of days notice so that we could organise alternative accomodation if Ronald McDonald House is not available.  Trying to find accomodation at a moments notice for one adult (my husband, as I will be staying in the hospital with my son) and 4 other children, is not easy or cheap.  Fuel to get down there will be expensive.  We spend $60 a week on fuel, as we live 20-30mins out of town, and go to town at least three times a week for shopping, all the doctors appointments, and daycare.  Also, we have to have money for meals as we cant rely on an esky, as we wont have room at our feet for one, and the back of the van is taken up by a twin pram. We are going to need over $300 for this trip.  I will only have around $150 or less for the trip, as my husband and I are both on Centrelink as my husband is too sick to work.  I would have extra money the week after the operation, but that is too late.  . I just feel like screaming at the moment!  I am worried that if I do, my blood pressure might go up and end up in hospital, or get an ulcer or........see what I mean about wanting to scream!!!!

RachelSaucy replied:

Lani

Sorry to hear of you troubles :( 

In regards to your money woes - maybe you could try ringing dept of health for nsw and asking about financial assistance - some states have financial assistance scheme to help with travel and accommodation costs if you have to travel for medical reasons.  Not sure if you and your family would qualify but it would be worth ringing and enquiring. 

If the above doesn't work you could ask Centrelink about an advance payment.

Did a search for you I think this is what I'm on about http://www.health.nsw.gov.au/living/transport/  there's some office numbers there give them a ring - hopefully they can help :)

hugs Rach xx

Zammy replied:

Leilani,
I'm so sorry to hear about your medical troubles! My best wishes are with you and your son in this difficult time.
If you do need to find last minute accomodation, I've found www.wotif.com.au to be really useful, it's discounted for last minute bookings.
Take care,
Shannon

Lilygirl_wytch replied:

Hi Leilani, 

So sorry to hear of your troubles, I do hope you can get well soon.  Dizzy spells are not fun, especially with all the stress you have at the moment.  My oldest son has Aspergers Syndrome, and when we lived in Sydney I contacted Dr Tony Atwood in Brisbane to help locate a specialist doctor for his reviews and any medication.  I will pm you his phone number and the girls in the office will be able to help you.  Dr Atwood is a specialist in all areas of ASD including Aspergers.  He has also written heaps of books. 

With your son's ceoliac condition, my brother was tested for that and was taken to a dietician to see exactly what he could and couldn't eat, as not all wheat products bothered him.  But each person is different, so do your homework carefully.  The celioac societies are wonderful and will help you immensely.

Accommodation crisis.. have you tried the hospital?  they may be able to advise you on crisis accommodation for you while your son is in hospital.  Just a thought.

Best of luck, and keep smiling, you are doing a terrrific job with 5 kids, I can sympathise I also have 5 boys and they do keep you busy.

You are a special angel blessed with very special kids

Lilygirl

SaucyHeaven replied:

To top everything off, I have just gotten back my Pap Smear results.  Abnormal, again.  I have had two in the past six months, and both say the same.  So I am going to insist on getting a Thin Prep Pap Test, at least that way, they will be able to tell me what is wrong, and not just say abnormal. 

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I cant afford any more things to go wrong.  Too much to do.

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I told my husband, if anything happens and it is cancer, I am looking for another wife for him.  That way I know she is going to look after the kids and him.  I said jokingly "I dont want a nasty b***h looking after my kids!"  I have been bawling my eyes out for the past little while.  I seriously hope it is just some nasty sod in the lab has made a mistake and everything is ok, but after two abnormal results, I am not betting on it.

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With my luck lately, anyone would think I had run over a black cat or something!  My black cat is still alive, and I dont drive.  So am trying to think of anything else I might have done wrong to deserve such bad luck.

SaucyHeaven replied:

I went to see the Doc on Friday 25th of May, and she said I had to wait for another 3 months before I could have another Pap Smear test done.  What if something is wrong?  Having to wait 3 months isnt good, a lot can happen in three months. 

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I have made appointments to get my EEG and CAT scans done. 

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Rego due a couple of days after my sons surgery. 

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Social Worker may be able to help us with getting some help to go to Sydney for sons op.

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Just thought I would let you know what was going on.

ExMember148 replied:

RE: pap smear waiting time - if they have asked you to wait 3 months, trust them, although you may think what can happen, they wouldn't leave it this wrong if there was something of particular bother.  Abnormal smears can be the result of simply taking the swab wrong, IF there was a slight chance that it was abnormal because of a cancer cell they would NOT leave it that long for a call back.

kathymollie replied:

Oh dear what a sad time for you.....l sincerley hope things start turning around for you soon....
Try and stay positive, even though it does become hard when all these obstacles and troubles befall you...........
I wish you all good thoughts and wishes.....
Regards..Kathy